Friday, August 27, 2010
Haygen Walking
This is a very happy day for Haygen baby!!! In February 2008 he began having seizures daily!! That was 20 to 100 seizures DAILY and in July 2009 he was diagnosed with Lennox Gastuast Syndrome, blindness and was put in a wheelchair because he had lost all mobile skills and was functioning on a 2 month old level. Today he is 4 years old and functions on a 7 month old level!! YAY!! And now this!!! This is so very exciting because the doctors told us he would NEVER get any better!!! Well, I guess we know who the real doctor in charge is now huh??
Labels:
AMEN,
Happy,
Haygen,
Lennox Gastuat Syndrome,
LGS,
OMG,
Tears,
Unbelievable,
Walking
Tuesday, August 17, 2010
Zan the Man!!!
He is taking care of his little brother!! He's so protective of him!!!
After one of his baseball practices!!! It looks like it was Haygen's practice!!! LOL
He is reading to his brother!!! He loves him soooo much!!!
He's so funny!!! :)
Me and Zan before I carried Haygen to Memphis!!!
- Posted using BlogPress from my iPhone
Haygen on wrong medicine
Haygen has seizures and if you havent been following his story Haygen has been having seizures since he was 18 months old and he had been having 20 to 100 seizures per day!! Yes, thats what right a DAY not a week or a month but a day!!! And he never cried with all of them until he got put on this new medicine for LGS. It was horrible!! And as a mother there is nothing that you can do you are just completely helpless!!! Thats the worst feeling in the world!!!
Haygen
Haygen and Zan
I know all of the pictures and videos are all out of order but I am trying to catch up and then I will keep up and keep it up to date. Sorry for not keeping it up to date sooner!!!
Haygen
This is the first day he got his wheelchair!!! He loved it!!! He couldn't stop smiling and laughing!!! :)
Monday, August 16, 2010
Haygen laughing
He was laughing in his sleep!! He had not laughed since he was 18 months old (that was when he first got sick)
Sunday, August 15, 2010
Sadness
As you all may know my friend lost her sweet angel baby Margot Friday. I have cried all weekend long for her and her family. And it has been for lots of reasons but one reason is knowing that could have been Haygen getting choked on his food before he got his feeding tube. Because everything he was eating and drinking was going to his lungs. My heart breaks for Carissa and her family.
If you would like to know how special Margot was you can visit
www.carissabyers.blogspot.com and see the angel that heaven just recieved.
Please keep this family in your prayers they are gonna need it in the days to come!!!
If you would like to know how special Margot was you can visit
www.carissabyers.blogspot.com and see the angel that heaven just recieved.
Please keep this family in your prayers they are gonna need it in the days to come!!!
Zan and Haygen
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