Haygen on wrong medicine

Haygen has seizures and if you havent been following his story Haygen has been having seizures since he was 18 months old and he had been having 20 to 100 seizures per day!! Yes, thats what right a DAY not a week or a month but a day!!! And he never cried with all of them until he got put on this new medicine for LGS. It was horrible!! And as a mother there is nothing that you can do you are just completely helpless!!! Thats the worst feeling in the world!!!