Haygen Walking

This is a very happy day for Haygen baby!!! In February 2008 he began having seizures daily!! That was 20 to 100 seizures DAILY and in July 2009 he was diagnosed with Lennox Gastuast Syndrome, blindness and was put in a wheelchair because he had lost all mobile skills and was functioning on a 2 month old level. Today he is 4 years old and functions on a 7 month old level!! YAY!! And now this!!! This is so very exciting because the doctors told us he would NEVER get any better!!! Well, I guess we know who the real doctor in charge is now huh??

Haygen on wrong medicine

Haygen has seizures and if you havent been following his story Haygen has been having seizures since he was 18 months old and he had been having 20 to 100 seizures per day!! Yes, thats what right a DAY not a week or a month but a day!!! And he never cried with all of them until he got put on this new medicine for LGS. It was horrible!! And as a mother there is nothing that you can do you are just completely helpless!!! Thats the worst feeling in the world!!!

Haygen

I don't know what it was but he sure thought it was funny!!! Lol


And again praying!!! :) God love him!!!


I think he's praying!!! :)


What I didn't do it?? Lol


Haygen at ACH!!! And he was still smiling!!! :)


He's so sweet!!!!


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Haygen and Zan

I know all of the pictures and videos are all out of order but I am trying to catch up and then I will keep up and keep it up to date. Sorry for not keeping it up to date sooner!!!

Haygen

This is the first day he got his wheelchair!!! He loved it!!! He couldn't stop smiling and laughing!!! :)

Haygen laughing

He was laughing in his sleep!! He had not laughed since he was 18 months old (that was when he first got sick)

Zan and Haygen

Zan is the best biggest brother EVER!!!!! Haygen couldn't hold his bottle so Zan propped it up for him with his baseball helmet!!! He is so funny but he loves his brother and he takes care of him!!!!

Haygen

He is very serious about watching his brother play some baseball!!!:)

Haygen

Haygen is 3 years old. He began having 20 to 40 seizures daily when he was 18 months old. Just this following week he was diagnosed with Lennox-Gastuat Syndrome. There is no cure for this syndrome. He was also diagnosed as blind. Please continue to pray for Haygen!!